International FAIR Registry for Intrathecal Analgesia
The first international FAIR registry for intrathecal analgesia: anonymized, GDPR-compliant data under academic scientific governance. For contributing centers, researchers and industry sponsors.
Data that is Findable, Accessible, Interoperable and Reusable : built on FHIR standards to serve research and improve outcomes.
The registry holds only anonymized data and is governed by a strict GDPR-compliant framework, with the appropriate ethical and regulatory approvals.
Scientific direction is led by an independent academic committee, ensuring neutrality and rigour across contributing centers and countries.
A neutral, international resource for intrathecal analgesia
Despite decades of clinical practice, intrathecal analgesia still lacks a shared, high-quality data resource. The Thalivia Registry aims to be the first international FAIR registry dedicated to the field : a neutral resource that benefits clinicians, researchers and patients alike. Where Thalivia Mentor is about peer discussion of individual cases, the registry is about structured, research-grade data at scale.
What the registry offers
- FAIR principles by design: Findable, Accessible, Interoperable, Reusable data built on FHIR standards
- Anonymized and GDPR-compliant: only anonymized data, under a rigorous regulatory and ethical framework
- Independent scientific governance: an academic scientific committee ensures neutrality and methodological rigour
- International scope: designed from the outset to bring together centers across Europe and beyond
Get involved
The registry is built collaboratively. Whether you represent a contributing center, a research team or an industry sponsor, get in touch to learn how to take part.
The first international FAIR registry dedicated to intrathecal analgesia : a shared, neutral resource for the whole field.
